some news

This might be a short update because there is a little monster upstairs who is about to wake up :) Thinks have been very busy lately with our little Aubrey. A highlight of this month was taking the kids to get their pictures taken. We went to a studio near our house called Portraits by Sharon. The photographer Sharon King was so patient and just wonderful! I'm going to post a few pictures of Aubrey on here Sharon was so kind to share with us. They are beautiful and I don't think that's just my bias opinion. I highly recommend her. http://www.portraitsbysharonphotography.com/

In medical updates. We had a visit with Aubreys neurologist where things went just ok. He head size has not grown the last few months and they said that means her brain is not growing. Her seizures are still not completely under control either. They are concerned her brain is not going to be able to keep up with what her body needs to be doing and usually the first thing with her condition to go is swallowing. We then went to her GI doctor to have a check up and mention what the neuro docs said about the swallowing. She sced. some tests. Long story short.....she has severe reflux and her GI doc thinks she will benefit from surgery and she aspirates all solid foods so she is going to have to get surgery for a feeding tube. They seem to really think it will help her gain weigh and she will really thrive from it. We don't have a date set up yet I'm just waiting to see her GI doc one more time so I will try to keep updates but its getting alot harder. Please say all the prayers you can