Friday, February 20, 2009

Updates

Hi everyone. Here is an update on Aubrey. We went into the hospital Monday for another EEG because I had some concerns that Aubrey was having seizures. They hooked her up and had us stay overnight. It was confirmed in the morning that she was indeed having seizures. The seizures she is having are called infantile spasms, causing her to have sudden jerking movements. These specific seizures are hard to treat with medication, instead they treat them with a diet called the ketogenic diet. Ketogenic is a high fat, high protein, no carb diet so its like Atkins for her. Since it is such a harsh diet to be on they increase the strength over a 3 day period to make sure your body can adjust and handle it. She was doing good in the beginning but yesterday she wasn't keeping anything down. They switched it back to medium strength and shes still not doing well. We are not sure how long we will be staying at Childrens now. We were supposed to leave today but now they have decided to keep her.
Aubrey is still having seizures but we are hopeful they will subside after her body gets used to the new diet.

4 comments:

  1. hey its kaitlin....hang in there babe. we are all thinking of you and princess! lincoln misses you guys and cant wait for another playdate!!
    love ya

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  2. Just read your update...my thoughts and prayers are with you guys. Even though we just met online, I feel a connection with you due to our daughter's diagnosis. I am here if you ever need support, b/c I know how much I needed it and I still do!! Always in my thoughts!!! Laurie

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  3. I pray for Aubrey everyday...
    Love ya always!!!

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  4. Hi Jill,

    I just wanted to let you know that I'm keeping your baby in my prayers.

    -Myra

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