Well I kinda knew this day was going to come sooner or later. The doctors have been discussing a feeding tube for some time now but since thing were going so well I thought we dodged a bullet. Well at our apt. last week they told us they were happy with how well she has been doing lately but they still feel the need to put in a feeding tube. The reasoning is they feel she needs a little extra help to start putting weight on. She does drink a lot and often but the amount of energy it takes her to drink 1 bottle she pretty much burns all of the calories shes getting just to drink it. They feel while she is stable now it would be a good time to do it so if she does ever get sick they wouldn't need to do emergency surgery. When she does get sick we usually have to go to the hospital to get a IV so she can stay hydrated because she doesn't eat. With the tube in we will no longer have to do that. They also want to do the surgery sooner than later because the later in the year it gets as the weather gets colder the more viruses and bugs come out. They do not want her recovering in the hospital full of sick kids with the flu, strep, colds etc....
Of course no one wants their child to have to go through any kind of surgery. It is a really tough time and something that is going to take a lot of getting use to, but I know she is strong and we will be strong with her. I know for me when I heard the words "feeding tube" I thought the worst. I thought that would be the only way she could eat and she would never take a bottle again. After getting all of the information and doing a lot of research I have been reassured. She can still drink from her bottle as much as she wants. She can still do all the things she does on a regular day. It will just be there "just in case" and to give her a little extra help and relief. They seem to think she will really thrive once this is done and that is such great news to hear. It has taken a while but I am starting to really feel good abut this decision. I don't want to be sad about this and I don't want anyone else to be either. Whatever is best for her health and to help her grow and develop and thrive I am excited about.
The surgery is scheduled for this Wednesday July 29Th. It is typically a 2 day recovery so we should be home Friday or Saturday. I will try to post after to update how things are going. Keep her in your prayers and I will write soon!!
